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First tagged "inspiring" by Leila Summers
Get More Details tags: disabled(3), bereavement(3), down syndrome(3), epilepsy(3), disability(3), life story(3), biography(3), blind(2), downs syndrome(2), autobiography(2), blind children, handicap
Product Description
How could a lady innate with a genetic forsake - who after suffered mind repairs withdrawal her blind, epileptic and physically handicapped, and who lived usually 8 years - change a world? Wordjazz for Stevie is a minute created to Stevie by her father after she had died to try to explain to her (and a world) a definition of her life. This is a book that everybody should read. It could change your life too.
Product Details
- Amazon Sales Rank: #2863196 in Books
- Published on: 2010-11-16
- Original language: English
- Number of items: 1
- Dimensions: .1 pounds
- Binding: Paperback
- 188 pages
Features
- ISBN13: 9789881774279
- Condition: New
- Notes: BRAND NEW FROM PUBLISHER! 100% Satisfaction Guarantee. Tracking supposing on many orders. Buy with Confidence! Millions of books sold!
Editorial Reviews
Review
"This might be a many relocating story we will ever read."
- Sunday Telegraph (leading British newspaper)
"It's positively unequivocally absolute indeed, and beautifully written... we unequivocally desired a book and found it unequivocally warm, relocating and inspiring.' - Judith Kendra, Publishing Director, Rider (an impress of Random House UK)
" beautiful musical and desirous writing. It done me cry, though did it make me distressed and sad? No, since it's above all a good jubilee of a time we had with Stevie and Bern, warts, wounds, travails, distresses and all." - Ron McMillan, author of Between Weathers
"It's beautiful."
- William Shaw, Editor of online literary non-fiction repository UnMadeUp.Com
If we had to select usually one book that celebrates life in a face of impassioned adversity, make it Jonathan Chamberlain's amatory paean to his dear though over daughter, Stevie. ... It is a covenant to how people can arise above a clearly indomitable with bravery and steadfastness. ... The reader's suggestion soars when Stevie encounters a singular run of fitness afterwards plunges when it heartbreakingly turns opposite her. Time afer time, Chamberlain recalls scenes that are monumental for people's cruelty, rapacity or fickleness - tools of a medical village included. But what a reader will remember is his steadfast adore for a child whose grin radiates from a front cover, and his indebtedness for his wife. --South China Morning Post, Mar 6, 2011
From a Publisher
In 1986, Jonathan Chamberlain and his mother Bernadette had their initial child, Stevie, a daughter. Stevie was immediately diagnosed with Down's syndrome. A few months after it became transparent that she had a critical heart forsake that compulsory a `hole in a heart' operation. Something went wrong during a operation and Stevie suffered a duration miss of oxygen that left her exceedingly brain-damaged. For a remaining 7 and a half years of her life she was blind, epileptic and incompetent to sit, let alone walk. She was profoundly handicapped.
Wordjazz for Stevie is a story of Jonathan's life with Stevie and a deeply profitable impact she had on his life. It is a story of good love. It is also a story of how this roughly strenuous swell of amatory appetite led Jonathan to found initial a Hong Kong Down Syndrome Association, and afterwards after another gift to take into China a same thought that a pivotal to ancillary children like Stevie is to support their relatives - and to see a problem as one involving a whole family.
The story that Jonathan tells is done even some-more touching by a fact that it deals also with his wife's catastrophic conflict with cancer. In a finish Jonathan is left to move adult his son Patrick as a singular father.
This is a brief book though heated and deeply moving. "This might be a many relocating story we will ever read," pronounced Britain's Sunday Telegraph.
Jonathan invented a word `Wordjazz' for a pretension as a shorthand to demonstrate a formidable of ideas. "I wanted a word to communicate a clarity of jubilee - this book is a jubilee of Stevie's life," he said. "Through me, Stevie has altered a world. That needs to be celebrated. And during a same time we wish to give a clarity that this book is not a candid linear revelation of a story. It is simply a usually approach we could tell it. It is a story from a heart. we doubt we will ever write anything better. This is a core and hint of my knowledge with Stevie and Bernadette."
From a Author
This is substantially a best book we will ever write - positively we will never write a book that is some-more meaningful. Stevie altered my life and we have created this book to honour her memory - and a adore that she desirous in all who knew her.
Customer Reviews
Most useful patron reviews
1 of 1 people found a following examination helpful.
Life-affirming book!
By Hue Huynh
"Wordjazz for Stevie" is a adore minute from author Jonathan Chamberlain to his Down Syndrome daughter, Stevie, who lived to a age of 8 and taught his relatives a loyal definition of life, love, happiness, pain. Stevie's brief life, unconditionally contingent on her relatives and medical inclination for simple biological survival, altered a lives of those who desired her, by creation them improved tellurian beings.
Stevie's relatives did not get a amniotic liquid exam for Down Syndrome and usually detected her medical condition on her birth. Although Mr. Chamberlain was profoundly saddened by this news, he motionless to quarrel for his daughter's life and did his best to make her life as gentle and happy as he presumably could, notwithstanding Stevie's comorbid complications and her parents' battles with amateurish and unpleasant medical professionals. The author consulted a best authorities on Down Syndrome in England and Italy since he could not find adequate veteran support and services in Hong Kong where he and his mother lived during a time.
Stevie's travails taught his father about a loyal definition of love, low pain, sacrifice, humanity. In today's world, many relatives whose fetuses exam certain for Down Syndrome select not to scapegoat a standing quo of their family life by sacrificing a life of a fetus. Mr. Chamberlain and his mother Bern were not presented with this option, yet with a second live-birth, his mother did elect to get an amniotic liquid exam so that they would not have to "bring up" another Down Syndrome child.
Finding small amicable and romantic support in Hong Kong for relatives with Down Syndrome children, Mr. Chamberlain founded dual charities for families with mentally disabled children. This book also discusses in good length a author's detriment of his mother to cancer shortly after Stevie's death. Their matrimony had been on a rocks due to a hurdles of bringing adult Stevie. Bern's imminent genocide from cancer, yet tragic, maybe brought them a bit closer in a end.
I trust this book was a author's approach of creation "sense" out of his meaningless experiences, and as a gushing for coping with his losses. While a universe discriminates opposite "imperfect" children, Jonathan Chamberlain desired his daughter Stevie with his whole being. Instead of saying her as a liability, he saw her as a present from God, if he believed in God. "Wordjazz for Stevie" is a present to us all.
0 of 0 people found a following examination helpful.
wordjazz for sure
By grandma dog
Not during all what we expected. Did not like a authors character of essay during all. Not certain what "wordjazz" means, though these difference did not come together to form any kind of tune for me.
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